Doing Better

I am physically feeling much better today.  Not as weak as I was yesterday but still a little lethargic.  I just need to get back in the habit of eating regularly to replenish my body.  And drink lots of fluids because I've also been dehydrated.  I get that way sometimes too.


In other news, my car is broken =(  The air conditioner just blows hot air now and the car just dies after it is in idle mode for a few minutes.  I'm taking it to the shop tomorrow to find out what needs to be fixed and how much it will cost :/

Blank

I am having a really bad 'disability' day today.  I don't know why some days are better than others.  But today my walking has been all over the place.  My balance seems to be the only thing affected on days like this.  They don't happen very often, maybe a few times a month.  But days like these make it hard to get through the day.  I mean, I'm bumping into walls, walking more zig-zaggy than usual, and my leg muscles just feel fatigued.  I didn't have a busy weekend at all.  I just relaxed and hung out.  So that is not to blame.  I even fell at lunch today; i tripped on a chair :(  Nice thing is, like four people came over to help me and make sure I was ok.  Man, sometimes I really am in disbelief I have ataxia.  I have class tonight but because of the day my body is having, I don't even think I'm gonna go.  The more walking I do, the more likely I will fall.  Especially on days like this.  I'm glad I have a desk job...lol.  I am just thankful my bad days are few and far between.  But when I ponder the situation, I'd rather have these kind of days than go through the things some people have to deal with.

Truckin' Along

People may beg to differ but I feel I have totally accepted my ataxia.  Without treatment I will have these symptoms the rest of my life and that they will get progressively worse; it's only a matter of time.  With that said, I do not by any means give up on improving my body and fighting the ataxia.  There is no reason to give up just because you have a chronic condition.  Like I always say, nobody knows what the future holds.  Why not be optimistic of treatment?  There are medical breakthroughs everyday.  My life has not been easy since I was diagnosed with this condition, but I will never give up til the day I die (and then I will be in Heaven where everything's perfect).  I think the main thing I can do right now is do anything I can to slow down the progression of my ataxia.  And I think what I've done the past 6 years has helped because my two MRIs show maybe like a 5% difference.  So I'm just going to keep doing what I've been doing and continue to check-in with my neurologist once a year.

Bummer :/

Although I got to rest all day Sunday,  I did way too much this weekend.  My legs still feel like jello :(  I was literally on my legs all day Saturday playing with the kids at the pool and then going dancing that night for almost 5 hours..  Don't get me wrong, I had a blast, and I would never sacrifice having this much fun because of my ataxia, but I agree it probably was a little much.  Look, you only have one life to live here so live it up!